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Lisa Herwig was diagnosed with Cystic Fibrosis shortly after she was born, and has faced a lifetime of treatment and medication to deal with the condition which means she has difficulty breathing and digesting food.  

Due to the severity of Lisa’s condition, she was put on the list for a double lung transplant when she was just four, but taken off the list again at eight as her lung function started to steadily improve.

Now, as an independent, outgoing young girl, Lisa desperately wants to plan her future.  But with her lung function at around 16 per cent, she has been back on the transplant list since June 2013 and she is waiting for the call that will change her life.

Lisa said:  “Even though I’ve always known a transplant was inevitable, when I was told it was time to list me, it was a huge shock.  It sounds crazy as I’ve lived with my illness all my life and was on the list as a child, but I remember feeling really panicky as I felt I wasn’t ready.  I wanted to make sure everything was sorted before the call came.  Now I am just waiting and desperately hoping.

"I have so much to live for, and getting the double lung transplant I desperately need would mean everything.  That’s why it’s so important people make their wishes known, and join the NHS Organ Donor Register.”